Valid Insight will be attending the World Orphan Drug Congress Europe 2026, taking place in Amsterdam on 26–28 October.
We look forward to engaging with the rare disease community and exchanging perspectives on how healthcare systems and policies can better address the needs of patients and caregivers.
We will also be sharing our research poster, “Rare disease as a shared societal responsibility: A patient advocate’s experience and the policy landscape for change.”
Drawing on a patient advocate’s lived experience, the research examines nine unmet caregiver needs and how effectively existing European policy initiatives respond to them.
Explore the research and download the poster in our Publications section.